Driving Miss Graycee 5K/Walk set for Saturday, June 27, 2015

Driving Miss Graycee 5K/Walk set for Saturday, June 27, 2015

Saturday, June 27th, 2015 family, friends, and neighbors will participate in a 5K/Walk in honor of young Graycee, a 10 year old girl born with a congenital seizure disorder. Money raised from the event will go towards helping Graycee’s family purchase a wheelchair-accessible van to help transport their daughter between appointments and other activities comfortably.

Saturday, June 27th, 2015 family, friends, and neighbors will participate in a 5K/Walk in honor of young Graycee, a 10 year old girl born with a congenital seizure disorder. Money raised from the event will go towards helping Graycee’s family purchase a wheelchair-accessible van to help transport their daughter between appointments and other activities comfortably.

Check-in for the Driving Miss Graycee 5K/Walk will start at 7:30am at Beaver Dick Park Saturday, June 27, 2015. Registration is $25.00 for adults and $15 for 18 years of age and younger. Other activities include a $5.00 pancake breakfast, Silent and Live Auction, Quilt Raffle, Live Music, and more. Register for the Driving Miss Graycee 5K/Walk today! 

Graycee was born with a congenital seizure disorder that has impacted her development and every aspect of her life. She is 10 years old and recently had spinal fusion surgery to correct a 115 degree curve in her spine.

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Graycee cannot sit up, roll over, or hold objects in her hands. She is tube fed via a “Mickey Button” in her stomach. In addition to her spinal fusion, Graycee has had “Nissen” fundoplication surgery, eye muscle surgery, and tonsil, adnoid and uvula ectomies. She receives “Botox” injections regularly to control muscle contractures. She takes several prescription medications for a variety of purposes (from controlling seizures to sleeping), receives Occupational Therapy and Physical Therapy weekly and Home Health services daily. Graycee uses several pieces of medical equipment each day including: stander, hospital bed, suction machine, bath chair, eyeglasses, patient lift, AFOs (leg braces), wheelchair, hand splints, and feeding pump.

Graycee is nonverbal, but communicates using eye gaze and other nonverbal communication methods. Graycee interacts with others through body language, laughter, cries, screams, coos, etc. She uses “Eagle Eyes,” an eye controlled mouse system, and an iPad with hand over hand assistance.

Graycee’s physical growth is consistent with a typical 10 year old child. She weighs 70 pounds and is 55 inches tall. As Graycee grows, transfers are becoming more and more difficult. She does not have the ability to assist with transfers and is essentially dead weight for her care givers. Following spinal fusion surgery, she no longer has the ability to bend or twist her spine making transfers more difficult.

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Transportation is a challenge for Graycee. Without a wheelchair-accessible vehicle, Graycee must be transferred out of her wheelchair and into a car seat. Her 65 pound wheelchair must then be lifted into the vehicle. In order to accommodate her wheelchair, seats must be removed making it impossible for her entire family to safely and legally travel in one vehicle. It is necessary to have a wheelchair-accessible van to allow Graycee to ride in her wheelchair during transportation. With a price tag of $50,000 or more, however, a wheelchair-accessible van has been financially out of reach.

Driving Miss Graycee fundraiser has been established to help Graycee’s family afford this much needed vehicle. Graycee attends Burton Elementary.

You can learn more about this incredible little girl and this important fundraiser at the Driving Miss Graycee Facebook Page or on the Go Fund Me Campaign Page.

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